The National Health Council (NHC) is urging the patient community to show its support for moving the 21st Century Cures legislation forward by the end of 2016 by signing the letter below. We ask that you lend your signature no later than noon Wednesday, November 16. Please share the URL of this page with other patient and family caregiver organizations and urge them to support this effort. If you have any questions about the letter, please contact Eric Gascho, NHC Vice President of Government Affairs, at firstname.lastname@example.org.
Note that only your organization name will appear on the letter and you must be authorized on behalf of your organization to commit to signing publicly.
November XX, 2016
The Honorable Mitch McConnell
The Honorable Harry Reid
The Honorable Paul Ryan
The Honorable Nancy Pelosi
Dear Leader McConnell, Leader Reid, Speaker Ryan, and Leader Pelosi:
We, the undersigned 217 organizations, represent a widely diverse community of patients and family caregivers with distinct perspectives; yet we stand united in support of the 21st Century Cures Act and urge you to support and move this legislation forward by the end of 2016. This legislation, which passed the House in July 2015 with broad bipartisan support, will help deliver treatments and cures to people who desperately need them.
It is based on thoughtful recommendations of the entire health community, and we thank the Energy and Commerce and Health, Education, Labor, and Pensions Committees for their tireless work to incorporate our feedback into the legislation.
This is a patient-focused bill that will advance the discovery and development of treatments, strengthen the patient voice in the research and regulatory environment, increase funding for the National Institutes of Health and Food and Drug Administration, and greatly improve our innovation ecosystem.
Millions of Americans are desperately waiting for effective treatments and cures for their chronic disease or disability. The organizations that represent these people with chronic conditions urge Congress to pass the 21st Century Cures Act in 2016 in order to speed the development of treatments and cures. Patients simply can't afford to wait -- time is running out.
Center for Independence of the Disabled, NY
Central Florida Behavioral Health Network
Crestwood School District
Florida Society of Clinical Oncology (FLASCO)
H.E.A.L.S of the South (Hepatitis Education, Awareness and Liver Support)
Lupus Alliance of Long Island/Queens
Lupus Alliance of Upstate New York
Lupus Foundation of Florida
Lupus Foundation of New England
Lupus Foundation of Northern California
Lupus Foundation of Pennsylvania
New England Regional Genetics Group, Inc. (NERGG)
North Carolina Rare Disease Coalition
Rhode Island Ehlers Danlos Syndrome Awareness and Support
Sarcoidosis of Long Island