Voluntary Health Agency Member
The Alpha-1 Foundation is a not-for-profit Florida corporation founded in 1995. The Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. The majority of the Board of Directors is either diagnosed with Alpha-1 or is a family member of an individual diagnosed with Alpha-1.
The Foundation has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with Alpha-1. It has fostered collaborations with investigators throughout the United States and in Europe, working closely with the National Institutes of Health (NIH), the Food and Drug Administration (FDA), people affected with Alpha-1, and the pharmaceutical industry to expedite the development of improved therapies, including aerosol delivery for augmentation therapy.
This organization has completed the National Health Council’s Standards of Excellence Certification Program and meets the highest standards of accountability, ethical practice, organizational effectiveness, and good public stewardship.
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