National Hemophilia Foundation

Voluntary Health Agency Member

Address: 
116 West 32nd Street
11th Floor
New York, NY 10001-3212
Phone: 
212-328-3700
Fax: 
212-328-3777

When the National Hemophilia Foundation (NHF) was established in 1948, people with hemophilia were known as "sufferers," and their life expectancy was less than 30 years. People with hemophilia had no formal means of communication, and no one advocated for research money, better healthcare, or improved insurance coverage. Families were not connected with other families. People had very little way of knowing if they were all alone or if there was anyone in their neighborhoods facing the same problems. Today, NHF makes an important difference in the lives of people and families with bleeding disorders. It has a national presence, chapters throughout the country, and an intricate communications network bringing healthcare professionals and consumers the latest bleeding disorders news. The Foundation aims to cure bleeding disorders. Its mission is education, research and advocacy on behalf of people with bleeding disorders.

This organization has completed the National Health Council’s Standards of Excellence Certification Program and meets the highest standards of accountability, ethical practice, organizational effectiveness, and good public stewardship. 

To learn more, click on the links below.