National Organization for Rare Disorders

Voluntary Health Agency Member

Address: 
1779 Massachusetts Avenue
Suite 500
Washington, DC 20036
Phone: 
202-588-5700
Fax: 
202-588-5701

If you live with a rare disease, or love someone who does, NORD is here to help you. For more than 30 years, we have been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. We are here to support every member of the rare disease community with programs and services focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases.

This organization has completed the National Health Council’s Standards of Excellence Certification Program and meets the highest standards of accountability, ethical practice, organizational effectiveness, and good public stewardship. 

To learn more, click on the links below.