PKD Foundation

Voluntary Health Agency Member

Address: 
1001 E 101st Terr
Suite 220
Kansas City, MO 64131
Phone: 
816-931-2600
Fax: 
816-931-8655

The PKD Foundation has been dedicated since its founding in 1982 to supporting and improving the lives of patients affected by polycystic kidney disease. These efforts are accomplished through promoting research to fund treatments and a cure as well as providing education, advocacy and awareness on a national level. The Foundation provides direct services to local communities nationwide and is the largest private funder of PKD research.

In the last 35 years, the PKD Foundation has invested more than $42 million in research, clinical and scientific grants, as well as fellowships and scientific meetings, making us the largest funder of PKD research after the National Institutes of Health (NIH). This has led to new discoveries about PKD, including identifying genes responsible for PKD, which enables researches to investigate potential treatments.

The Foundation provides in-depth resources and education about living with PKD to empower people to manage their health. Offerings include webinars, videos, and a multi-faceted website. Voices of PKD features testimonials about people’s experiences with the disease, and discussion boards provide a forum for patients, family and friends to connect online. The PKD Foundation’s national, biennial conference, PKD Connect, is the Foundation’s largest education event and will be held June 28 – July 1, 2018, in Kansas City, MO.

This organization has completed the National Health Council’s Standards of Excellence Certification Program and meets the highest standards of accountability, ethical practice, organizational effectiveness, and good public stewardship.