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1. ALL PATIENTS HAVE THE RIGHT
TO INFORMED CONSENT IN TREATMENT DECISIONS, TIMELY ACCESS TO
SPECIALTY CARE, AND CONFIDENTIALITY PROTECTIONS.
Patients should be treated courteously with
dignity and respect. Before consenting to specific care choices,
they should receive complete and easily understood information
about their condition and treatment options. Patients should
be entitled to: coverage for qualified second opinions; timely
referral and access to needed specialty care and other services;
confidentiality of their medical records and communications
with providers; and, respect for their legal advanced directives
or living wills.
2. ALL PATIENTS HAVE THE RIGHT
TO CONCISE AND EASILY UNDERSTOOD INFORMATION ABOUT THEIR COVERAGE.
This information should include the range
of covered benefits, required authorizations, and service
restrictions or limitations (such as on the use of certain
health care providers, prescription drugs, and "experimental"
treatments). Plans should also be encouraged to provide information
assistance through patient ombudsmen knowledgeable about coverage
provisions and processes.
3. ALL PATIENTS HAVE THE RIGHT
TO KNOW HOW COVERAGE PAYMENT DECISIONS ARE MADE AND HOW THEY
CAN BE FAIRLY AND OPENLY APPEALED.
Patients are entitled to information about
how coverage decisions are made, i.e., how "medically
necessary" treatment is determined, and how quality assurance
is conducted. Patients and their caregivers should have access
to an open, simple and timely process to appeal negative coverage
decisions on tests and treatments they believe to be necessary.
4. ALL PATIENTS HAVE THE RIGHT TO
COMPLETE AND EASILY UNDERSTOOD INFORMATION ABOUT THE COSTS
OF THEIR COVERAGE AND CARE.
This information should include the premium
costs for their benefits package, the amount of any patient
out-of-pocket cost obligations (e.g., deductibles, copayments,
and additional premiums), and any catastrophic cost limits.
Upon request, patients should be informed of the costs of
services they've been rendered and treatment options proposed.
5. ALL PATIENTS HAVE THE RIGHT
TO A REASONABLE CHOICE OF PROVIDERS AND USEFUL INFORMATION
ABOUT PROVIDER OPTIONS.
Patients are entitled to a reasonable choice
of health care providers and the ability to change providers
if dissatisfied with their care. Information should be available
on provider credentials and facility accreditation reports,
provider expertise relative to specific diseases and disorders,
and the criteria used by provider networks to select and retain
caregivers. The latter should include information about whether
and how a patient can remain with a caregiver who leaves or
is not part of a plan network.
6. ALL PATIENTS HAVE THE RIGHT TO
KNOW WHAT PROVIDER INCENTIVES OR RESTRICTIONS MIGHT INFLUENCE
PRACTICE PATTERNS.
Patients also have the right to know the
basis for provider payments, any potential conflicts of interest
that may exist, and any financial incentives and clinical
rules (e.g., quality assurance procedures, treatment protocols
or practice guidelines, and utilization review requirements)
which could affect provider practice patterns.
ALL PATIENTS, TO THE EXTENT CAPABLE,
HAVE THE RESPONSIBILITY TO:
(It is recognized that patients may suffer
significant physical and/or mental conditions which may limit
their ability to fulfill these responsibilities.)
7. PURSUE
HEALTHY LIFESTYLES.
Patients should pursue lifestyles known
to promote positive health results, such as proper diet and
nutrition, adequate rest, and regular exercise. Simultaneously,
they should avoid behaviors known to be detrimental to one's
health, such as smoking, excessive alcohol consumption and
drug abuse.
8. BECOME KNOWLEDGEABLE ABOUT THEIR
HEALTH PLANS.
Patients should read and become familiar
with the terms, coverage provisions, rules and restrictions
of their health plans. They should not be hesitant to inquire
with appropriate sources when additional information or clarification
is needed about these matters.
9. ACTIVELY PARTICIPATE IN DECISIONS
ABOUT THEIR HEALTH CARE.
Patients should seek, when recommended for
their age group, an annual medical examination and be present
at all other scheduled health care appointments. They should
provide accurate information to caregivers regarding their
medical and personal histories and current symptoms and conditions.
They should ask questions of providers to determine the potential
risks, benefits and costs of treatment alternatives. Where
appropriate, this should include information about the availability
and accessibility of experimental treatments and clinical
trials. Additionally, patients should also seek and read literature
about their conditions and weigh all pertinent factors in
making informed decisions about their care.
10. COOPERATE ON MUTUALLY ACCEPTED
COURSES OF TREATMENT.
Patients should cooperate fully with
providers in complying with mutually accepted treatment regimens
and regularly reporting on treatment progress. If serious
side effects, complications, or worsening of the condition
occur, they should notify their providers promptly. They should
also inform providers of other medications and treatments
they are pursuing simultaneously.
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