National Health Council Member Profile
A Voluntary Health Agency Member
2937 SW 27th Avenue
Miami, FL 33133
The Alpha-1 Foundation is a not-for-profit Florida corporation founded in 1995. The Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1. The majority of the Board of Directors is either diagnosed with Alpha-1 or is a family member of an individual diagnosed with Alpha-1.
The Foundation has realized continuous growth since its inception and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with AAT Deficiency. It has fostered collaborations with investigators throughout the United States and in Europe, working closely with the National Institutes of Health (NIH), the Food and Drug Administration (FDA), individuals affected with AAT Deficiency, and the pharmaceutical industry to expedite the development of improved therapies, including aerosol delivery for augmentation therapy.
This organization has completed the National Health Council’s Standards of Excellence Certification Program and meets the highest standards of accountability, ethical practice, organizational effectiveness, and good public stewardship.
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