Representation and Presentations
March 2009 Update
The National Health Council joined the Coalition Against Major Diseases (CAMD). This coalition is sponsored by the Critical Path Institute, in collaboration with the Engelberg Center for Health Care Reform at the Brookings Institution. The initial work of this coalition will focus on pre-competitive projects that create standards and a common research support infrastructure including pooled data from clinical trails to establish a computer model for one or more major diseases. It will begin with focusing on Alzheimer’s and Parkinson’s, then expand to other diseases.
Myrl Weinberg spoke at the Drug Information Association Annual Conference for Contemporary Pharmacovigilance and Risk Management Strategies. Myrl spoke on Regulator and Public Health Approaches to Minimizing Medical Product Risk from the Consumer Representative Perspective. She also participated in a panel titled “Communication, Management, and Minimization of Medical Product Risk: Is Responsibility Truly Being Shared?”
Marc Boutin participated in a panel on intellectual property at a FDA Sentinel event co-sponsored by eHealth Initiative and the FDA and convened by the Engelberg Center for Health Care Reform. The panel addressed the potential functions and structures of Sentinel. Marc has also participated as part of a working group for the Better Health Care by Design initiative. This initiative aims to formulate solutions to help people living with complex chronic diseases who face the increasing problem of out-of-pocket costs.
Staff contact: Nancy Hughes, Director, Communications and Marketing
