Details for: PKD Foundation
A Voluntary Health Agency Member
8330 Ward Parkway
Kansas City, MO 64114-2027
The PKD Foundation is the only organization solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD) to improve the lives of those it affects. We do this through promoting research, education, advocacy, support and awareness on a national level, along with direct services to local communities across the country. Our vision is that one day no one will suffer the full effects of PKD.
Since its founding in 1982, the PKD Foundation has invested more than $31 million in research, clinical and scientific grants, as well as fellowships and scientific meetings, making us the second largest funder of PKD research after the National Institutes of Health (NIH). This has led to new discoveries about PKD, including identifying the genes responsible for PKD, which enables researchers to investigate possible treatments.
The Foundation provides in-depth resources and education about living with PKD to empower people to manage their health. Offerings include webinars, videos, and a multi-faceted website (www.pkdcure.org/learn). Voices of PKD (www.pkdcure.org/voicesofpkd) features testimonials about people’s experiences with the disease, and discussion boards provide a forum for patients, family and friends to connect online. The PKD National Convention is the Foundation’s largest education event and will be held June 20-22, 2014, in Kansas City, Missouri.
This organization has completed the National Health Council’s Standards of Excellence Certification Program and meets the highest standards of accountability, ethical practice, organizational effectiveness, and good public stewardship.
To learn more, click on the links below.