National Health Council — Voluntary Health Agency Guide

The Paget Foundation

The Paget Foundation is a voluntary health agency devoted to serving patients with several bone-related disorders: Paget's disease of bone, primary hyperparathyroidism, fibrous dysplasia (including McCune-Albright syndrome), osteopetrosis(not the more common disorder osteoporosis)and the effects of certain cancers on the skeleton.

Foundation programs and services include patient, professional and public education and research advocacy.

About the condition(s):

Paget's disease of bone , first described by the eminent British surgeon Sir James paget in 1877, is a disorder of bone remodeling in which there is excessive bone resorption followed by excessive bone formation. This results in bone that is architecturally unsound. The disease may cause enlargement and deformity of one or more bones, resulting in bone pain, arthritis, skeletal deformities and fractures.The most common skeletal sites are the femur, tibia, pelvis, vertebr' and skull, which can become enlarged and lead to headaches or hearing loss when the temporal bone is involved.