Reports to: Vice President, Patient Engagement Wage Category: FT/Exempt
ABOUT THE COMPANY
The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families and tens of millions of Americans at risk.
The Patient Engagement Senior Manager will support the Vice President, Patient Engagement in integrating the patient’s voice into all aspects of NKF’s programs, initiatives, and decision-making. The Patient Engagement Senior Manager will manage our 200+ patient and family advocates (Kidney Advocacy Committee). NKF’s Kidney Advocacy Committee (KAC) members are a select group of high-level volunteers who engage with policy makers and promote kidney awareness, education and patient engagement in healthcare delivery and development of new therapies. They bring patient/family voice to NKF’s legislative priorities, program and education development, and also serve on panels, advisory boards, and as speakers at conferences hosted by various external partners such as government agencies and pharmaceutical companies.
Management of this elite group includes cultivating and maintaining relationships with advocates and developing and implementing a strategy for growth and ongoing training.
Education and training for advocates will aim to equip them with the knowledge they need to feel confident being spokespersons in a variety of settings such as: advisory panels, committees, or conferences on healthcare research, quality improvement measures, public policy, program or drug development, etc. This position will also assist with development and implementation of surveys; educational content, tools and materials.
In addition, this position will be responsible for identifying and preparing advocates for participation in engagement activities. NKF is currently working on a patient registry which will utilize input from our patient advocates and this position will work closely with NKF’s patient registry team. The Patient Engagement Senior Manager will track all internal and external engagement positions KAC members are involved and provide ongoing support to advocates and follow up post-activity to obtain advocate feedback on experience.
Each year, NKF hosts a Kidney Patient Summit in D.C. where 100 patients, families and living donors meet with lawmakers and put a human face on kidney disease and bring attention to NKF’s position on policies and legislation affecting kidney patients. The Patient Engagement Senior Manager will be responsible for working with NKF’s government relations staff in D.C. as well as with the VP, Patient Engagement to plan, coordinate, and execute a successful Summit each year in March.
NKF has a vast constituency which includes: the general public, those at risk, chronic kidney disease patients, dialysis patients, transplant patients and living donors. Central to the Patient Engagement Senior Manager’s role is the ability to work with a variety of internal staff as well as external partners, patients and volunteers.
PRINCIPAL DUTIES AND RESPONSIBILITIES
Works collaboratively with and supports multi-departmental efforts and projects. Able to develop and maintain effective relationships with NKF’s patient and professional members/volunteers as well as with NKF Staff.
Obtain, synthesize, and facilitate representation of the views of our constituents affected by kidney disease.
Establishes processes, coordinates, and manages patient/caregiver/consumer feedback (surveys, advisory boards, panels, forums, events, etc.).
Manages tracking database of patient engagement activities.
Oversees the development of tools and support mechanisms to enable the full participation of patients and caregivers in all aspects of NKF’s programs, educational resources, and initiatives.
Innovative thinker who uses strong critical thinking and problem-solving skills.
Manages relationships with external partners.
- Bachelor Degree from an accredited college or university is required. Degree in Science, Public Health, Healthcare, social science or higher education preferred.
- Superior interpersonal skills and ability to work collaboratively with patients and professions across the country from our diverse constituency as well as with internal staff.
- Minimum 3-5 years’ work-related experience in patient services or advocacy.
- Experience working with patient volunteers.
- Clear, well developed oral and written communication and presentation skills.
- Creative self-starter with close attention to detail who is able to see the big picture, balance priorities, and remain flexible.
- Experience working in a multi-faceted not-for-profit organization.
- Knowledge of kidney disease and its treatment is preferred.
- Excellent time management, project management and organizational skills.
- Strong analytical, planning, and proactive problem solving/decision making skills.
- Ability to work independently and as a member of an integrated team.
- Proficient in Microsoft Office applications.
Please apply via email with your resume, cover letter, and salary expectations: