The National Health Council has created this special page for its members to post job openings and to foster the unique talent pool of patient advocacy organizations. For more information on posting a job, click here.
The Association for Vascular Access (AVA) is seeking a highly skilled individual to provide leadership in this newly created position for communications, new media strategies and IT infrastructure. The successful candidate will work remotely from a home office anywhere in the United States and will receive tremendous support from AVA staff at other locations. This individual will provide leadership in updating and maintaining the IT infrastructure. The Director will design and lead the social media/marketing, communications and messaging efforts. They will work with the Board and staff to ensure that all communications and messaging efforts are consistent, contemporary and professional. The Director will also maximize the effectiveness of current and future projects such as the recently launched AVA TV.
The National Multiple Sclerosis Society is seeking a Government Relations Manager in its Washington, D.C. office. The position will be responsible for public policy and legislative research and analysis to determine, assess and manage the Society’s federal, state and local policy priorities. The position will also represent the needs of people with multiple sclerosis (MS) and their families on Capitol Hill through direct lobbying of members of Congress and administration officials, as well as attending and reporting on congressional briefings and hearings. Other duties include drafting of advocacy-related materials including testimony and policy support letters, cultivating relationships with activists and supporting advocacy action days. BA/BS Degree or equivalent and 5 years related experience required; Masters or law degree, experience in a legislative office (Congressional or state) and/or experience in healthcare and/or disability policy preferred.
The National Multiple Sclerosis Society is seeking an Office Administrator in its Washington, D.C. office. The Office Administrator manages the day to day operations of the D.C. based Public Policy Office. This includes support of all advocacy team members, both remote and in office employees; acting as a liaison with the building management; acting as liaison with key functional areas with other teams; supporting the Public Policy Conference and playing an increasing role in information support and management of advocacy related information. Associated Degree or equivalent and 3 years related experience required.
Reporting to the Chief Scientist, the Director, Research Information will manage the day to day activities of the research program, including progress report review; dissemination of progress in lay terms for specific donors, communication of program highlights and investigator publications to the ALS community and particularly ALS Association chapters. The Director, Research Information will be responsible for keeping abreast of all developments in the ALS field and work with the Chief Scientist to explore new avenues of research that would add to the value of current programs. In addition, the Director, Research Information will cultivate the trust and confidence of national staff, chapters and other business partners, to establish effective relationships and communications. The Director, Research Information will be accountable for a current knowledge base of ALS research. The position would involve travel to scientific meetings of importance to the research programs.
The March of Dimes Foundation is seeking a Federal lobbyist for its Office of Government Affairs. Responsibilities include advocating throughout the budget and appropriations process with a focus on maternal and child health. The position will also be responsible for a portfolio of public health issues. Experience working with Capitol Hill and the budget and appropriations process preferred; advanced degree desirable. Competitive salary and benefits in a family friendly environment. Apply online.
The Lupus Foundation of America is currently seeking a New York-based Regional Director to join its team of dynamic Network Development professionals! The Lupus Foundation of America, Inc. is the only national force devoted to solving the mystery of lupus – one of the world’s cruelest, most unpredictable, and devastating diseases – while giving caring support to those who suffer from its brutal impact.
The Lupus Foundation of America is seeking a part-time, temporary Health Educator to work remotely approximately 10 hours per month through July to answer inquiries in English and Spanish.
The Health Educator supports the mission by responding directly to inquiries by phone and email and coordinating responses to inquiries among LFA’s network of health educators. The Health Educator is responsible for providing medically sound information and referral to appropriate resources.
The Crohn's & Colitis Foundation of America (CCFA) is seeking a CEO to lead it into its next phase of growth and continued program and service excellence. He/she will work closely with the National Board of Trustees, manage a 5-person senior team, oversee 240 staff in 40 regional chapters, and raise a budget of $75 million. The ideal candidate is a dynamic, inspiring, and visionary leader who will have proven senior leadership, management, business, and financial acumen within an organization of similar scale and complexity; passion for CCFA's mission and a commitment to finding cures; successful fundraising experience; gravitas to partner with multiple constituents; and a national perspective.
Reporting to the CEO, the Vice President (VP) for Advocacy & Access serves as the key leadership team member making strategic decisions affecting NEA and the eczema community. This position is responsible for development and implementation of key transformation initiatives as outlined in The Decade of Eczema: A Roadmap to Advocacy Report 2015. With new eczema treatments on the horizon, there is great potential for real, practical, and game changing impact for eczema patients. This new VP Advocacy position will be a key influence in breaking through traditional barriers for eczema patients and will be instrumental in achieving the new horizons for NEA as set out in the Roadmap.
Reporting to the CEO, the Vice President (VP) for Expansion serves as a key leadership team member and an active participant in making strategic decisions affecting NEA. This position is responsible for all fundraising and Development activities. The successful candidate will help forge new relationships to build NEA’s visibility, impact, and financial resources. The VP for Expansion will design and implement a comprehensive plan for developing key external alliances by cultivating individual and philanthropic support.
The VP for Expansion will have primary responsibility for establishing and implementing the infrastructure needed to double a $1.5M budget through the solicitation of major gifts, general donations, grants, special events, and foundation support.