Fair Market Value Calculator Steering Committee

  • Kate Avery, Director of Research, Beyond Celiac
  • John Boyle (and Lynn Albizo), President & CEO, Immune Deficiency Foundation
  • Barbara Collura, President & Chief Executive Officer, RESOLVE
  • Tracy Hart, Chief Executive Officer, Osteogenesis Imperfecta Foundation
  • Louise Vetter , President & Chief Executive Officer, Huntington’s Disease Society of America
  • Ellen Ivey, National Advocacy Policy Director, Strategic Customer Group, Oncology, Solid Tumor, Johnson & Johnson

Tools to Support Sponsor-Patient Engagement: Fair-Market-Value Calculator and Engagement Templates

Tools to Support Sponsor-Patient Engagement: Fair-Market-Value Calculator and Engagement Templates

The NHC wants to ensure that all stakeholders confidently enter into ongoing, compliant, and sustainable engagement efforts that effectively drive health care innovation based on patient and caregiver insights, which must be collected in a trusted and high-quality manner. This project aims to support sustainable agreements between stakeholders and the patient and caregiver community as part of medical product development by:

Glossary of Patient Engagement Terms

Glossary of Patient Engagement Terms

 

The definitions of these terms, which includes Family Caregiver, Meaningful Engagement, and Patient-Focused Drug Development, stem largely from our patient engagement work, including our ‘Patient-Focused Drug Development -  Recommended Language for Use in Guidance Document Development’ Paper with Genetic Alliance, as well as our Value Rubric, and Representativeness Rubric.

Pages

Subscribe to RSS - Resources