Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
Patient Experience Map
08/25/2021Patient Experience Mapping About the Toolbox The Patient Experience Mapping Toolbox is a set of publicly available resources to help researchers engage and document patients’
Guest Blog: Finding Strength in Community: National Infertility Awareness Week
04/22/2024Guest Blog: Finding Strength in Community: National Infertility Awareness Week By: Simeonne Bookal, Senior Manager, Communications and Programs, RESOLVE: The National Infertility Association National Infertility
Biden Administration Addresses Short-Term Health Plans
04/18/2024Biden Administration Addresses Short-Term Health Plans By: Allen Pinn, Policy Coordinator In a big win for people with chronic diseases and disabilities, the Biden Administration
Guest Blog: Sjögren’s: A Misunderstood and Underdiagnosed Autoimmune Disease
04/17/2024Guest Blog: Sjögren’s: A Misunderstood and Underdiagnosed Autoimmune Disease By: Janet E. Church, President and CEO, Sjögren’s Foundation April is Sjögren’s Awareness Month, a time
Get to Know: Micah Nation, Director, Executive Office
04/15/2024Get to Know: Micah Nation, Director, Executive Office Tell us something about you that no one would know from reading your resume. Beyond what
Launch of Us Consensus Framework to Advance Health Equity & Ethical Collaboration
04/12/2024Launch of Us Consensus Framework to Advance Health Equity & Ethical Collaboration The National Health Council (NHC), National Medical Association (NMA), and Pharmaceutical Researchers &
NHC Conducts Training on its Patient Experience Mapping to the American Kidney Fund
04/11/2024NHC Conducts Training on its Patient Experience Mapping to the American Kidney Fund By: Equity, Research & Programs Portfolio The National Health Council’s (NHC), Patient
NHC Statement for House Energy and Commerce Hearing
04/10/2024NHC Statement for House Energy and Commerce Hearing (PDF) April 10, 2024 The Honorable Brett Guthrie Chair Committee on Energy and Commerce United States House
Future of the Safe Step Act
04/04/2024Future of the Safe Step Act By: Allen Pinn, Policy Coordinator Step therapy, sometimes referred to as ‘fail first’ or ‘step protocol,’ has severe consequences
Guest Post: Now is the Time to Act for Patients
04/03/2024GUEST POST: Now is the Time to Act for Patients By: Robert Anderson, VP of Corporate Affairs, Boehringer Ingelheim USA Corporation; President, Boehringer Cares Foundation