Value Initiative Actions


The U.S. health care system is undergoing a transformation in how it delivers and pays for care. As traditional fee-for-service gives way to value-based arrangements, understanding the “value” of health care has become a national priority. Value frameworks have emerged as tools to help stakeholders assess new treatments. But, the utility and role of these new tools are being debated. The National Health Council is focused on ensuring the voice of the patient and patient organizations are an integral part of this discussion. Access materials from our recent in-person trainings on value assessment:

  • “Back to School with the National Health Council: Patient Community Training on Value Assessment,” which was held in Washington, DC, on September 6, 2019 here.
  • “Value Assessment Frameworks” at the BIO Patient and Health Advocacy Summit on October 31, 2019 here.

Value Model Rubric

The National Health Council, with stakeholder input, has created a Value Model Rubric to help evaluate the patient centeredness of value models and to guide value model developers on the meaningful incorporation of patient engagement throughout their processes.

Value Framework Get Ready Checklist

A step-by-step guide for patient advocacy organizations to engage in the development, implementation, and assessment of value frameworks.

NHC Educational Program: Health Econ 101

Online series, currently comprised of seven modules, introduces the basics of health economics and value assessment. Each module takes between 10-15 minutes to complete. 

Read More

Patient-Driven Values in Healthcare Evaluation (PAVE) Center

A collaboration between the University of Maryland School of Pharmacy, the NHC, patient community leaders, and payer and industry stakeholders. The Center strives to promote the inclusion of diverse patient voices in research to help uncover the elements of value in health care that are most important to patients. 

Visit the PAVE website.

The NHC's Value Work Group

The Value Work Group meets on a monthly basis by teleconference to share and learn from each other’s’ experiences, and to stay up-to-date on topics related to value assessment. The Work Group currently has representatives from 21 patient groups with either prior direct experience with value assessment organizations. The Work Group is open to NHC patient-group members and non-member patient organizations by invitation. 

Learn More

Overcoming Barriers to Amplify Patient Voice

The NHC’s report describes participants visions of success, current barriers, and 17 recommended actions on the part of patient groups, VA bodies, or both in collaboration for achieving success. 

Read More 

For questions related to the NHC’s value initiative, please contact Aimee Russell.

ISPOR and the NHC partnered on a matchmaking effort in which health outcomes researchers have volunteered to be matched with a patient group to collaborate on economic, epidemiology, and outcomes studies. Click here to get involved.