We are the United Patient Voice.
More than 133 million Americans live with a chronic disease or disability – many without effective treatments or a cure. We are working to change this.
How We Get Things Done
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Health Care Reform
The National Health Council will continue to take a leadership role to ensure the people who need health insurance coverage most - those with chronic diseases and disabilities – are considered in any efforts to replace the Patient Protection and Affordable Care Act.
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Reducing Health Care Costs
The NHC developed a patient-centered framework for reducing health care costs with three driving principles: promote high-value care; stimulate research and competition; and curb costs responsibly. The NHC and its members identified four main policy priority areas that have the potential to reduce costs for patients and the health care system.
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Discussing Real-World Evidence
The topic of real-world evidence (RWE) has gained considerable attention recently. As health researchers, policymakers, and regulators establish standards and structure for using real-world data (RWD) as evidence in regulatory and clinical decision making, patients must be the primary focus. We brought together a multi-stakeholder roundtable on RWE, with patient advocacy organizations comprising the majority of participants. This report describes the roundtable, discussions, and findings.
Standards of Excellence
The National Health Council demands the highest standards of accountability and ethical practice from its patient advocacy group members to assure the public that these organizations are worthy of support.