CEO of Osteogenesis Imperfecta Foundation to Chair National Patient Advocacy Organization

Washington, DC (December 14, 2015) – The National Health Council (NHC) announced that Tracy Hart of Gaithersburg, Maryland, will be the 2016 chairperson of the NHC’s Board of Directors. Hart is the Chief Executive Officer of the Gaithersburg-based Osteogenesis Imperfecta Foundation (OI Foundation), whose mission is to improve the quality of life for people with OI through research to find treatments and a cure, education, awareness, and mutual support.

Hart is also the chair of the Rare Bone Disease Patient Network, a founding member of the National Bone Health Alliance and the Bone Coalition for Osteoporosis and Related Bone Diseases, a member of the National Institutes of Health’s Federal Working Group on Bone, and was recently appointed to the National Institute of Dental and Craniofacial Research Advisory Council.

In the coming year, Hart will work with the NHC Board of Directors and NHC staff to focus on the following policy issues:

  • Strengthening the health insurance marketplaces to protect people with chronic conditions
  • Championing the patient voice in quality measures and payment models
  • Promoting the integration of the patient perspective into the development and regulation of medical products
  • Working with the Senate Committee on Health, Education, Labor, and Pensions as it works to pass the Innovation for Healthier Americans legislation
  • Presenting a united patient voice as FDA and industry negotiate the user fee agreements

The NHC is the only organization that brings together all segments of the health community to provide a united voice for the more than 133 million people with chronic diseases and disabilities and their family caregivers. Made up of more than 100 national health-related organizations and businesses, the NHC’s core membership includes the nation’s leading patient advocacy organizations, which control its governance. Other members include professional and membership associations, nonprofit organizations with an interest in health, and major pharmaceutical, medical device, health insurance, and biotechnology companies. Visit to learn more.

Jill Roberts

PDF Version: