2018 Chief Medical/Scientific Officers Conference

Sharing Patient-Centered Outcomes Data: Building A Better Mousetrap Based on Learnings from the Research Community
October 15-16, 2018
Washington, DC
 
 

Patient Provided Information: How Best to Store, Integrate, Share, and Learn?
Sean Khozin, MD, MPH, Director, Information Exchange and Data Transformation, Associate Director, Oncology Center of Excellence, Food and Drug Administration

Reactor Panel

  • Karen Erickson, Associate Executive Director, Community Engagement, Alpha-1 Foundation
  • Richard A. Moscicki, MD, Chief Medical Officer & Executive Vice President, PhRMA

Transforming Data Silos into an Arsenal

  • Moderator: Daryl Pritchard, PhD, Senior Vice President, Science Policy, Personalized Medicine Coalition
  • Joni Rutter, PhD, Director of Scientific Programs, NIH All of US Research Program Slides

Reactor Panel

  • Tanisha Carino, PhD, Executive Director, FasterCures – A Center of the Milken Institute
  • Brandy Fureman, PhD, Vice President, Research & New Therapies, Epilepsy Foundation

Data Warehousing and Sharing

  • Moderator: Gavin Corcoran, MD, FACP, Executive Vice President, Research & Development, Axovant Sciences Inc.
  • Angela Dobes, MPH, Senior Director, IBD Plexus, Chron’s & Colitis Foundation Slides
  • Sean Khozin, MD, MPH, Director, Information Exchange and Data Transformation, Associate Director, Oncology Center of Excellence, Food and Drug Administration
  • Robert McBurney, PhD, CEO, Accelerated Cure Project for Multiple Sclerosis Slides

Collecting and Using Patient-Provided Data: What are the Ethical Issues?
Camille Nebeker, Professor, University of California San Diego Slides

Creating the FDA Patient Experience Data Repository
Theresa Mullin, PhD, Associate Director for Strategic Initiatives, Center for Drug Evaluation and Research, Food and Drug Administration Slides

Unique Sources, Unique Approaches

  • Moderator: Luther T. Clark, MD, FACC, FACP, Deputy Chief Patient Officer, Global Director, Scientific Medical and Patient Perspective, Office of the Chief Patient Officer Merck & Co.
  • Holly Schachner, MD, US Medical Chair, Sanofi
  • John Wilbanks, Chief Commons Officer, Sage Bionetworks 

Leveraging Machine Learning and Artificial Intelligence: Is the Buzz Real?

  • Moderator: Guy Eakin, PhD, Senior Vice President, Scientific Strategy, Arthritis Foundation
  • Pietro Michelucci, PhD, Executive Director, Human Computation Institute
  • Mohamed Yassine, MD, VP, Head of US Medical, UCB Slides

The Patient in the Driver’s Seat

  • Moderator: George Gondo, Director of Research & Grants, Amputee Coalition
  • Bruce Bebo, PhD, Executive Vice President of Research, National Multiple Sclerosis Society
  • Karen Erickson, Associate Executive Director, Community Engagement, Alpha-1 Foundation
  • Leslie Hanrahan, Vice President, Education and Research, Lupus Foundation of America