Membership Directory


The National Health Council is made up of more than 125 national health-related organizations, divided into five membership categories:

  • Voluntary Health Agencies (also known as patient advocacy organizations)
  • Professional and Membership Associations
  • Nonprofit Organizations with an Interest in Health
  • Business and Industry
  • Associate Members

The National Health Council brings together diverse stakeholders within the health community to work for health care that meets the personal needs and goals of people with chronic diseases and disabilities.


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Voluntary Health Agencies

Also known as patient advocacy organizations, VHAs are composed of individuals, both lay and professional, voluntarily and democratically organized. Their mission is to combat a particular disease, disability, or group of diseases and disabilities, or to improve and protect the health of a particular group of people.

Alpha-1 Foundation ALS Association
Alzheimer's Association American Autoimmune Related Diseases Association
American Cancer Society American Diabetes Association
American Foundation for Suicide Prevention American Heart Association
American Kidney Fund American Liver Foundation
American Lung Association Amputee Coalition
Arthritis Foundation Asthma and Allergy Foundation of America
Barth Syndrome Foundation Beyond Celiac
Celiac Disease Foundation Charcot-Marie Tooth Association
Colorectal Cancer Alliance COPD Foundation
Cure SMA Epilepsy Foundation
FH (Familial Hypercholesterolemia) Foundation Food Allergy Research & Education
Foundation for Ichthyosis & Related Skin Types GO2 Foundation for Lung Cancer
Huntington's Disease Society of America Hydrocephalus Association
Immune Deficiency Foundation LAM Foundation
Lupus Foundation of America Marfan Foundation
Mended Hearts Mental Health America
Myasthenia Gravis Foundation of America Myositis Association
National Alopecia Areata Foundation National Blood Clot Alliance
National Eczema Association National Foundation for Ectodermal Dysplasias
National Hemophilia Foundation National Kidney Foundation
National Multiple Sclerosis Society National Organization for Rare Disorders
National Osteoporosis Foundation National Psoriasis Foundation
Osteogenesis Imperfecta Foundation Parent Project Muscular Dystrophy
PKD Foundation Prevent Blindness
Prevent Cancer Foundation Pulmonary Fibrosis Foundation
RESOLVE: The National Infertility Association Sjogren's Syndrome Foundation
Solve ME/CFS (Myalgic Encephalomyelitis Chronic Fatigue Syndrome) Initiative Spina Bifida Association
The Spondylitis Association of America Tourette Association of America
WomenHeart: The National Coalition for Women with Heart Disease

Professional and Membership Associations

Nonprofit Organizations with an Interest in Health


These members are organizations that are considered to be primarily vendors. Associate Members have all member privileges, except they are not allowed to be represented on the Council's Board of Directors or Nominating Committee and cannot vote at meetings of the entire membership.