Membership Directory


The National Health Council is made up of more than 125 national health-related organizations, divided into five membership categories:

  • Voluntary Health Agencies (also known as patient advocacy organizations)
  • Professional and Membership Associations
  • Nonprofit Organizations with an Interest in Health
  • Business and Industry
  • Associate Members

The National Health Council brings together diverse stakeholders within the health community to work for health care that meets the personal needs and goals of people with chronic diseases and disabilities.


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Voluntary Health Agencies

Also known as patient advocacy organizations, VHAs are composed of individuals, both lay and professional, voluntarily and democratically organized. Their mission is to combat a particular disease, disability, or group of diseases and disabilities, or to improve and protect the health of a particular group of people.

Alpha-1 Foundation ALS Association
Alzheimer's Association American Autoimmune Related Diseases Association
American Cancer Society American Diabetes Association
American Foundation for Suicide Prevention American Heart Association
American Kidney Fund American Liver Foundation
American Lung Association Amputee Coalition
Arthritis Foundation Asthma and Allergy Foundation of America
Barth Syndrome Foundation Beyond Celiac
Celiac Disease Foundation Charcot-Marie Tooth Association
Children’s Cardiomyopathy Foundation Colorectal Cancer Alliance
COPD Foundation Cure SMA
Epilepsy Foundation EveryLife Foundation
FH (Familial Hypercholesterolemia) Foundation Food Allergy Research & Education
Foundation for Ichthyosis & Related Skin Types GBS-CIPD Foundation
GO2 Foundation for Lung Cancer Huntington's Disease Society of America
Hydrocephalus Association Immune Deficiency Foundation
LAM Foundation Lupus Foundation of America
Marfan Foundation Mended Hearts
Mental Health America Myasthenia Gravis Foundation of America
Myositis Association National Alopecia Areata Foundation
National Blood Clot Alliance National Eczema Association
National Foundation for Ectodermal Dysplasias National Hemophilia Foundation
National Kidney Foundation National Multiple Sclerosis Society
National Organization for Rare Disorders National Osteoporosis Foundation
National Psoriasis Foundation Osteogenesis Imperfecta Foundation
Pancreatic Cancer Action Network (PanCAN) Parent Project Muscular Dystrophy
PKD Foundation Prevent Blindness
Prevent Cancer Foundation Pulmonary Fibrosis Foundation
RESOLVE: The National Infertility Association Sjogren's Syndrome Foundation
Solve ME/CFS (Myalgic Encephalomyelitis Chronic Fatigue Syndrome) Initiative Spina Bifida Association
The Spondylitis Association of America The Trevor Project
Tourette Association of America WomenHeart: The National Coalition for Women with Heart Disease

Professional and Membership Associations

These associations are health-related organizations consisting primarily of individuals, or of state and local groups of individuals, meeting stated qualifications of training or experience. Other membership associations are health-related associations of individuals or institutions, including alliances and coalitions.


These members are organizations that are considered to be primarily vendors. Associate Members have all member privileges, except they are not allowed to be represented on the Council's Board of Directors or Nominating Committee and cannot vote at meetings of the entire membership.