Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Patient Experience Map

08/25/2021

Patient Experience Mapping About the Toolbox The Patient Experience Mapping Toolbox is a set of publicly available resources to help researchers engage and document patients’

May 7th (5/7) and the 57kb Deletion for Cystinosis Awareness Day

05/02/2024

May 7th (5/7) and the 57kb Deletion for Cystinosis Awareness Day By: Heather Fields Rothrock, Member, Board of Directors, Cystinosis Research Network Introduced in 2018,

NHC Comments on Medicare Advantage and Prescription Drug Programs: Part C and Part D Medicare Prescription Payment Plan Model Documents

04/29/2024

NHC Comments on Medicare Advantage and Prescription Drug Programs: Part C and Part D Medicare Prescription Payment Plan Model Documents (PDF) April 29, 2024 Chiquita

Patient Care Pathways to Advance Personal, Population & Planet Health

04/29/2024

Patient Care Pathways to Advance Personal, Population & Planet Health By: Randall Rutta, CEO, National Health Council The National Health Council (NHC) recognizes the pivotal

Guest Blog: The Powerful Movement Celebrating Limb Loss and Limb Difference in April and Beyond

04/26/2024

Guest Blog: The Powerful Movement Celebrating Limb Loss and Limb Difference in April and Beyond By: Cass Isidro, President and Chief Executive Officer, Amputee Coalition  

Minority Health Month Reflection on Community Resilience

04/25/2024

Minority Health Month Reflection on Community Resilience By: Karen Mancera-Cuevas, DrPH, MS, MPH, CHES Senior Director, Health Equity April is Minority Health Month. Health campaigns

Guest Blog: Finding Strength in Community: National Infertility Awareness Week

04/22/2024

Guest Blog: Finding Strength in Community: National Infertility Awareness Week By: Simeonne Bookal, Senior Manager, Communications and Programs, RESOLVE: The National Infertility Association National Infertility

Biden Administration Addresses Short-Term Health Plans

04/18/2024

Biden Administration Addresses Short-Term Health Plans By: Allen Pinn, Policy Coordinator In a big win for people with chronic diseases and disabilities, the Biden Administration

Guest Blog: Sjögren’s: A Misunderstood and Underdiagnosed Autoimmune Disease

04/17/2024

Guest Blog: Sjögren’s: A Misunderstood and Underdiagnosed Autoimmune Disease By: Janet E. Church, President and CEO, Sjögren’s Foundation  April is Sjögren’s Awareness Month, a time

Get to Know: Micah Nation, Director, Executive Office

04/15/2024

Get to Know: Micah Nation, Director, Executive Office Tell us something about you that no one would know from reading your resume.   Beyond what