25th Annual Voluntary Health Leadership Conference

Rancho Bernardo Inn
San Diego, California
February 8-10, 2012
Each year, the National Health Council (NHC) brings together the chief executive officers and their lead volunteers from member patient advocacy organizations to learn about the latest in medical research and health care policy, and to share best practices for meeting their organizational goals to serve people with chronic diseases and disabilities.
The 25th Annual Voluntary Health Leadership Conference was held in February 2012. The attendees at this conference heard from the following leading authorities on issues of concern to the patient advocacy community. Below are links to their presentations and short video interviews with some of the speakers.
The Global Biomedical Industry: Preserving U.S. Leadership
Ross DeVol , Chief Research Officer, Milken Institute
Patient-Centered Outcomes Research Institute (PCORI)
Joe Selby, MD, MPH, Executive Director, PCORI
Case Study: Can you hear me now? – Setting a breakthrough goal that is loud and clear!
Steve Taylor, Chief Executive Officer, Sjögren’s Syndrome Foundation
Lynn Petruzzi, Board Chair, Sjögren’s Syndrome Foundation
Ken Economou, Board Member, Sjögren’s Syndrome Foundation
Essential Health Benefits
Reginald D. Williams II, Director, Avalere Health
Marc Boutin, Executive Vice President & Chief Operating Officer, National Health Council
Charity Accountability, Impact, and the BBB Wise Giving Alliance
H. Art Taylor, President & Chief Executive Officer, Better Business Bureau Wise Giving Alliance
Technology and Health Care: Giving the Patient Voice
Doug Ulman, President, Lance Armstrong Foundation
Aimee Jungman, Vice President, Health & Wellness Strategy, Frog Design
Abbe Don, Co-lead, Connected Health, IDEO
Ben Roin, JD, Hieken Assistant Professor of Patent Law, Harvard Law School
Paul Sheives, JD, Director, Diagnostics and Personalized Medicine Policy, Biotechnology Industry Organization (BIO)
Eric Gascho, Director, Government Affairs, National Health Council
WHO Initiative: Prevention and Control of Non-Communicable Diseases (NCD)
James Hospedales, MD, Chief, Unit of Chronic Diseases, Pan American Health Organization, Regional Office of the World Health Organization
WHO NCD Initiative: Implications for U.S.-based Patient Advocacy Organizations
Larry Hausner, Chief Executive Officer, American Diabetes Association
Nancy Brown, Chief Executive Officer, American Heart Association
Doug Ulman, President, Lance Armstrong Foundation

The 25th Annual Voluntary Health Leadership Conference was made possible with the support of

Premier Sponsors
  • AstraZeneca Pharmaceuticals
  • Johnson & Johnson
  • Eli Lilly and Company
  • Pfizer Inc
  • Purdue Pharma, L.P.
Leading Sponsors
  • AdvaMed
  • Astellas Pharma US
  • Bristol-Myers Squibb Company
  • Roche
Supporting Sponsors
  • American College of Cardiology
  • Biotechnology Industry Organization (BIO)
  • Community Health Charities
  • Drug Information Association
  • Faegre Baker Daniels Consulting
  • National Pharmaceutical Council