27th Annual Voluntary Health Leadership Conference

Omni Tucson National Resort
Tucson, Arizona
February 12-14, 2014

Change can be unnerving. But change is necessary for patient advocacy organizations to remain strong and to serve a growing population of people with chronic conditions.

The attendees at the National Health Council’s 27th Annual Voluntary Health Conference heard from leading authorities on issues of change in the patient advocacy community, in health research, and in patient care. Below are links to their presentations and short videos.


Rick Johnston, CAE, Vice President, Association Practice Lead, ICF Interactive
Opening Presentation
Closing Presentation
Resources on Innovation

Innovative Strategies for Translational Research and Patient Engagement

Christopher P. Austin, MD, Director, National Center for Advancing Translational Sciences (NCATS), National Institutes of Health
Due to a major snow storm on the east coast, Dr. Austin was not able to attend and gave his presentation via the Internet.
Presentation Slides
Web Presentation

Implementing Patient Centered Care and Cultural Transformation

Presentation Slides
Dream Rangers Video
Video Interview

Making Sense of the State Health Insurance Exchanges

Kelly Brantley, Senior Manager, Avalere Health
Presentation Slides on Insurance Exchanges: Opportunities & Threats
Presentation Slides on PuttingPatientsFirst.net

Innovative Strategies to Generate New Revenue

Randy Beranek, President & Chief Executive Officer, National Psoriasis Foundation

Colby Evans, Chair-Elect, Board of Trustees, National Psoriasis Foundation
Presentation Slides

Unwinding to Free the Canaries

John Walsh, Chief Executive Officer, President & Co-Founder, Alpha-1 Foundation

Henry Moehring, Member, Board of Directors, Alpha-1 Association

Craig Kephart, Executive Director, COPD Foundation
Presentation Slides

Organization Structures for Relevance and Currency

Jenifer Holland, Director of Consulting, BoardSource
Presentation Slides
YWCA Video

Transforming a Century-Old Organization

Marla Weston, PhD, RN, FAAN, Chief Executive Officer, American Nurses Association
Presentation Slides

Getting to Mission Through Innovative Business Ventures

Bernard Dennis, Chair, Board of Directors, American Heart Association

Nancy Brown, Chief Executive Officer, American Heart Association
Presentation Slides

National Health Council Overview

Myrl Weinberg, FASAE, CAE, Chief Executive Officer, National Health Council
Presentation Slides


The 27th Annual Voluntary Health Leadership Conference was made possible with the support of

Premier Sponsors
  • Genentech
  • Eli Lilly and Company
  • Johnson & Johnson
  • Novartis Pharmaceuticals
  • Pfizer
Leading Sponsors 
  • AdvaMed
  • Astellas Pharma
  • Bristol-Myers Squibb 
  • Pharmaceutical Research and Manufacturers of America
  • Sanofi
Supporting Sponsors 
  • Allergan
  • Community Health Charities
  • Drug Information Association
  • Edelman Public Relations
  • Grifols
  • The National Hospice and Palliative Care Organization
  • The National Pharmaceutical Council