28th Annual Voluntary Health Leadership Conference

Ponte Vedra Inn & Club
Ponte Vedra Beach, Florida
February 11-13, 2015

Changes in technology, medical research, and health care delivery create both challenges in opportunities for the future of patient advocacy organizations. The 28th Annual Voluntary Health Leadership Conference: Changing the Game focused on different ways organizations can prepare for and be successful in a constantly shifting environment.

The attendees at the conference heard from leading authorities on issues of change in the patient advocacy community, in health research, and in patient care. Below are links to slide presentations and video interviews for some of the speakers.


Innovation Ecosystems: 21st Century Cures

Steve Ubl, President and Chief Executive Officer, AdvaMed

Jim Greenwood, President and CEO, BIO

John Castellani, President and CEO, PhRMA

State Health Insurance Exchange Update

Kelly Brantley, Senior Manager, Avalere Health

ACA State Implementation

Randy Beranek, President and CEO, National Psoriasis Foundation

Louis DeGennaro, PhD, President and CEO, The Leukemia & Lymphoma Society
> Slides

Ann Palmer, President and CEO, Arthritis Foundation

Turning Dark Data Into Light

Debbie King, CEO, DSK Solutions, Inc.

NHC Basics

Myrl Weinberg, FASAE, CAE, Chief Executive Officer, NHC

Patient-Focused Drug Development

Anton Hoos, MD, Head of Medical R&D Europe, Amgen

Michael Rosenblatt, MD, Executive Vice President and Chief Medical Officer, Merck & Co.

Roslyn Schneider, MD, Global Patient Affairs Lead, Pfizer Inc

PCOR.net - What It Is and Why It is Important

Jean R. Slutsky, PA, Chief Engagement and Dissemination Officer, PCORI

New Strategies for Zebras

Marcia Boyle, President and Founder, Immune Deficiency Foundation

Kate Sullivan, MD, Wallace Chair, Chief of Allergy Immunology, Children's Hospital of Philadelphia

John Walsh, President, CEO, and Co-Founder, Alpha-1 Foundation

Looking Ahead: NHC 2015 and Beyond

Marc Boutin, Incoming CEO, National Health Council

ALS Ice Bucket Challenge: Coping with Unexpected Good Fortune

Barbara Newhouse, President and CEO, The ALS Association

Bill Thoet, Chair, Board of Trustees, The ALS Association


The 28th Annual Voluntary Health Leadership Conference was made possible with the support of

Premier Sponsors
  • AbbVie
  • AstraZeneca Pharmaceuticals
  • Eli Lilly and Company
  • Johnson & Johnson
  • Novartis Pharmaceuticals Corp.
Leading Sponsors
  • AdvaMed
  • Astellas Pharma
  • Bristol-Myers Squibb
  • Genentech
  • Pharmaceutical Research and Manufacturers of America
Supporting Sponsors
  • Abbott
  • Biotechnology Industry Organization
  • Community Health Charities
  • Drug Information Association
  • Grifols
  • National Hospice and Palliative Care Organization
  • National Pharmaceutical Council
  • Quintiles