Program Coordinator

Immune Deficiency Foundation
Posted Date: 
Tuesday, July 9, 2019

The Immune Deficiency Foundation (IDF), founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immune deficiency diseases (PI) through advocacy, education and research.

To advance its mission in support of the PI community, this position will be responsible for coordinating, managing and attending state-level education meetings, present on the organization’s activities, interact with
individuals with primary immunodeficiencies (PI), family members, medical professionals, volunteers and industry representatives.

This position will also provide support and information to individuals with PI and family members. Support of additional IDF initiatives is required. This position will represent the organization to the public and interact closely with other staff members, particularly those involved in patient services, the Volunteer Network and Walk for PI activities.

This position requires a great deal of travel, particularly on weekends, flexible hours are required.

Reports To: Associate Director of Patient Advocacy & Vice President of Education

Position(s) Supervised: None
FLSA Classification: Exempt

Patient Education

  • Responsible for all aspects of coordinating, managing and attending state-level education meetings
  • Present on the organization’s activities
  • Interact with individuals with PI, family members, medical professionals, volunteers and industry representatives
  • Provide feedback to the organization after attending and managing a state-level education meeting

Patient Support

  • Provide support and information to individuals with PI and family members
  • Respond to requests received from individuals to locate a specialist
  • Provide backup coverage for the Associate Director of Patient Advocacy

All other duties as assigned


  • Experience presenting to groups
  • Outgoing and can communicate warmly and effectively with constituents via e-mail, phone, and in-person
  • Self-starter, ability to work both independently, and in a team environment
  • Detail oriented
  • Can manage multiple projects simultaneously, with strict deadlines
  • Positive, enthusiastic attitude
  • Able to exercise judgment to sensitive and confidential information in a discrete and nprofessional manner, and can represent IDF tactfully and diplomatically
  • Familiarity in using constituent relationship management (CRM) databases
  • Proficient with Word, Excel and PowerPoint


  • Bachelor’s degree required
  • Previous patient services experience preferred
  • Experience working with PI or other rare disease communities a plus


  • Is able to travel by automobile, train, and airline.
  • Is able to interact with groups of people in healthcare facilities, in small group settings, and at large events.

While performing the duties of this job, the employee is required to walk; climb stairs, and sit for long periods of time; use hands & fingers for writing and typing; Possible lifting of supplies and materials up to and including 20 pounds multiple times. Specific vision abilities required by the job include close vision for reviewing documents on the computer or hardcopy.

If interested, please send resume and cover letter to