The National Health Council has created this special page for its members to post job openings and to foster the unique talent pool of patient advocacy organizations. For more information on posting a job, click here.
Position Overview: The Immune Deficiency Foundation (IDF), founded in 1980, is the national nonprofit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases (PI) through advocacy, education and research. The Vice President of Institutional Advancement is an adjusted version of a position that was left vacant when IDF’s now-President was promoted to his current role.
The Osteogenesis Imperfecta Foundation (OIF) seeks a Manager of Professional Education and Outreach. The manager will develop and provide materials, trainings and meetings aimed at assisting medical professionals with providing care to their patients with osteogenesis imperfecta (OI). In addition, the manager will provide opportunities for collaboration with other medical professionals through OIF sponsored events and activities and will serve as the primary contact with professional societies and other organizations interested in OI research and treatment. The manager will also work clo
Care Services is one of the three mission areas of the ALS Association. (The other two are research and advocacy). We have the privilege of working with 15,000 people living with ALS across the United States through a network of 39 affiliated chapters, over 130 clinical partners, and other like-minded organizations. We facilitate cross-department deliverables at the national office and strive to continually identify needs of our communities to offer programs and materials to address those needs.
The Amyotrophic Lateral Sclerosis Association (ALS Association or Association) was organized in 1985 through the merger of its predecessors, The Amyotrophic Lateral Sclerosis Society of America and The National ALS Foundation, Inc. The Association’s mission priorities are to fund research directed at finding the cause and cure for the disease, amyotrophic lateral sclerosis (ALS), commonly known as “Lou Gehrig’s Disease,” to provide clinical, educational and other programs and services to people living with ALS and their families, health care professionals, and other key stakeholders, and t