NHC Center of Educational Excellence
The National Health Council encourages patients and patient advocates to be engaged in research, policy, medical-product development, quality-of-care, and value-of-treatment initiatives. We have developed the NHC Center of Educational Excellence, an e-learning resource, to help patients and patient advocates understand complex topics related to patient centricity in health care. Here you will find our webinar series on value and payment models as well as educational curriculums on quality measures and value assessments.
There is growing interest in clinical outcomes assessments, such as patient-reported outcomes, and patient-centeredness across the healthcare ecosystem. For example, in 2019, the Food and Drug Administration will release two new guidance documents on clinical outcome assessment. The NHC seeks to ensure that the NHC membership is prepared to engage in conversations about clinical outcome assessment. We will post information about upcoming and past webinars, along with in-person meetings and other resources on this page.
Real-World Evidence: The Patient Perspective
The topic of real-world evidence (RWE) has gained considerable attention recently. As health researchers, policymakers, and regulators establish standards and structure for using real-world data (RWD) as evidence in regulatory and clinical decision making, patients must be the primary focus. Since the idea of RWD is new to many in the patient community, it is important to explore the patient community’s needs, concerns, and potential contributions and uses of RWE to ensure the patient voice is considered.
The National Health Council (NHC) envisions a society in which all people have access to quality health care that respects personal goals and aspirations and is designed around the patient experience to promote their best possible health outcomes. One of the biggest barriers to access is the rising cost of care, especially for the more than 160 million Americans with chronic diseases and disabilities.
The U.S. health care system is undergoing a transformation in how it delivers and pays for care. As traditional fee-for-service gives way to value-based arrangements, understanding the “value” of health care has become a national priority. Value frameworks have emerged as tools to help stakeholders assess new treatments. But, the utility and role of these new tools are being debated. The National Health Council is focused on ensuring the voice of the patient and patient organizations are an integral part of this discussion.
The NHC is focused on ensuring the voice of patients and patient organizations are included in the value discussion. The NHC has developed:
Whether shopping for a car, or a computer, or health insurance, having choices can be a good thing. But if you don't have all the information you need to do an accurate side-by-side comparison - or the information isn't presented in a way to make it easy to compare - the decision process becomes very frustrating. If a consumer picks health coverage that doesn't meet his or her unique health and budget needs, health care costs can add up.