Value Work Group

The National Health Council’s Value Work Group meets on a monthly basis by teleconference to share and learn from each other’s’ experiences, and to stay up-to-date on topics related to value assessment. The Work Group currently has representatives from 21 patient groups with either prior direct experience with value assessment organizations, such as the Institute for Clinical and Economic Review (ICER), American Society of Clinical Oncology (ASCO), the National Comprehensive Cancer Network (NCCN), etc., or that expect to interact with one of these organizations soon. The Work Group is open to NHC patient-group members and non-member patient organizations by invitation.

Current work group members include:

  • American Heart Association
  • Arthritis Foundation
  • Asthma and Allergy Foundation
  • Cancer Support Community
  • CancerCare
  • Crohn’s & Colitis Foundation
  • Cure SMA
  • Cystic Fibrosis Foundation
  • Depression and Bipolar Support Alliance
  • Diabetes Patient Advocacy Coalition
  • Food Allergy Research & Education
  • GO2 Foundation for Lung Cancer (formerly Lung Cancer Alliance)
  • Immune Deficiency Foundation
  • Lupus Foundation of America
  • Lymphoma Coalition
  • Mental Health America
  • Multiple Sclerosis Association of America
  • National Alliance on Mental Illness (NAMI)
  • National Alopecia Areata Foundation
  • National Bone Health Alliance
  • National Diabetes Volunteer Leadership Council
  • National Eczema Association
  • National Headache Foundation
  • National Multiple Sclerosis Society
  • National Osteoporosis Foundation
  • Parent Project Muscular Dystrophy
  • Prevent Blindness
  • Sick Cells
  • The AIDS Institute
  • The FH Foundation

For more information, please contact Aimee Lee Russell.